I know I’ve been slacking on blogging…. There haven’t been too many new things going on with Dalton. We are just impatiently waiting for July to come so we can see the Ophthalmologist and Endocrinologist. Thanks to someone who read my blog, I have found another A-R parent. You may not understand just how happy that makes me. I finally feel like I’m not alone in this world of A-R. Not that I don’t have my family, but having another A-R parent is different. It’s going to be nice to have someone who relates to our situation and who can possibly answer some questions.
We went to the doctor today for his 18 month check up. He is back in the 50th percentile for height and weight!!! She still wants us to go to the Pediatric Endocrinologist to make sure everything is ok since it has jumped up and down. We are hoping it’s just his growth spurts.
I was just added to a group on facebook for Axenfeld-Rieger syndrome. After reading what some of the other parents have said about their children, I have really realized we have been lucky so far with this syndrome. There are so many others out there that have many more of the effects than Dalton has shown. You don’t really realize how good you have it until you read other stories. We are truly blessed.
